A Patient Advisory Board consists of patients, caregivers or advocates who bring their personal experience and knowledge to help researchers improve their research activities.
As highlighted in the PINNACLE name, we place a great emphasis on patients being at the centre of our research. We firmly believe that listening to patients, patients’ families and the public can lead to meaningful improvements on how research can improve patients’ lives. By working together in collaboration, the Patient Advisory Board provides a safe space to share ideas and experiences. It is important to have perspectives from someone (you!) who can help us improve how we conduct research and provide care.
If you are interested, we will ask you for your contact information so that we can send you updates on studies at PINNACLE. Based on your experience and interests, you may be invited to participate in a meeting with the PINNACLE team. At this meeting, you may be asked to assist us by:
a) Sharing your personal experiences in the health care system, or
b) Providing feedback on documents, such as consent forms or questionnaires, or
c) Providing ideas for what kind of research would be meaningful to you, or
d) Providing feedback about a mobile/online platform being considered for a study
Your participation and time is valued greatly, so we will reimburse you for any travel and parking costs. You will also receive a gift card as a small token of our appreciation for your advice and feedback.
We are looking for patients, caregivers, or advocates – of all ages and ethnicities – who have personal experience with surgery or have depression. We want to especially encourage older adults or those of a visible minority to participate.