Media Coverage

  1. (2020). How digital tools can advance quality and equity in genomic medicine. Jul 06. HealthCanal
  2. (2020). How digital tools can advance quality and equity in genomic medicine. Jul 03. Medical Xpress
  3. (2019). Are We Responsible for Contacting Research Participants With New Genetic Findings? Apr 05. Technology Networks.
  4. Defining the responsibility to recontact research participants with new genetic findings. Apr 04. Medical Xpressand Eurek Alert! 
  5. (2019). ASHG Issues Research Recontact Guidelines in New Position Statement. Apr 04. Genome Web. and Diagnostics World News 
  6. Sophie-Andrée Blondin. (2019). Ce dilemme qui survient quand des résultats de recherche en génétique sont réinterprétés. April 14. Radio Canada international (RCI).
  7. Dr. Neha Chaudhary. (2018). If we want better health care, we should try asking the patients: OPINION. July 26. ABC News. More Information.
  8. Mary Dickie. (2018). Using patient engagement to improve outcomes in health-care redesign. July 26. St. Michael’s Hospital Newsroom.
  9. (2018). Engaging patients in health care redesign improves outcomes. July 25. Medical Xpress.
  10. Michael Oliveira. (2018). Web tool Genomics ADvISER aims to demystify genomic sequencing and the “Pandora’s box” dilemma. July 17. St. Michael’s Hospital Newsroom. More Information.
  11. Brandie Weikle. (2018). Door will open to genetic discrimination if act protecting Canadians is overturned, genomics expert says. May 14. MSN News, Yahoo! News, VTN, My Blog, CBC on Tumblr, Worship Media, EON TV, aewaz, Longwoods, News, Celeb Gossip News, SciPol., CBC News.  
  12. (2018). Genetic Non-Discrimination Act challenge from Quebec may open doors to genetic discrimination. May 14. Bioengineer.org., EurekAlert!
  13. BJ Durant. (2018). Door will open to genetic discrimination if act protecting Canadians is revoked, confirms genomics expert. May 14. TechnoStalls.com. 
  14. (2018). Canada’s GNA challenge from Quebec could pave way for genetic discrimination. May 14. News Medical, Brinkwire, Medical Xpress., ScienMag., Science Codex. ,
  15. Redactor. (2018). Door will open to genetic discrimination if act protecting Canadians is overturned, genomics expert says. May 14. Abilk.
  16. Leo Almazora. (2018). Quebec challenge to genetic non-discrimination act reopens debate. May 16. Life Health Pro.
  17. Marc Montgomery. (2018). The importance of the genetic non-discrimination act. May 15. Radio Canada international (RCI). More Information.
  18. Michael Adams. (2017). Genetic information is off limits. September 13. International Law Office.
  19. (2018). Overturning Law Could Lead to Genetic Discrimination. May 14. Genome Web.
  20. Denis Méthot. (2018). Discrimination génétique : un chercheur de l’Université McGill émet ses preoccupations face aux assureurs. January 28. Journal de l’assurance.
  21. Carrie Arnold. (2017). The uncertain future of genetic testing. September 30. The Caregiver Space., BJ Innovate.
  22. Carrie Arnold. (2017). Sometimes Gene Tests Only Lead to More Questions. July 25. Vice Tonic.
  23. Mike Hoy. (2017). Why insurers are wrong about Canada’s genetic non-discrimination law. September 12. The ConversationMore Information.
  24. Geoff Koehler. (2017) Lost in translation. July 24. St. Michael’s Hospital Newsroom. More Information.
  25. Carrie Arnold. (2017). The uncertain future of genetic testing. July 18. Mosaic Science,  Scroll.in. Science Chronicle, Corporate Sundae, Scoopster, MyInforms. The Atlantic, Long Island Tech News, Unhinged Group, Kopitiam Bot, True Viral News, Dotemirates Medical Xpress, Medical Press, Digg
  26. Carrie Arnold. (2017). Genetic testing? Its uncertainty is higher than you think. July 27. Tuxi. YTHaute. Phoer, Sohu, PC Online News, PC Online, Sina, Lei Phone. 
  27. Carrie Arnold. (2017). Want to diagnose the disease through genetic testing? But the uncertainty is even worse. July 27. NajialuoNetEase, Cnhan.com
  28. Carrie Arnold. (2017). The people whose genetic tests uncover mysteries. New York Magazine, Science of Us.
  29. Carrie Arnold. (2017). El futuro incierto de las pruebas genéticas. July 19. Taringa
  30. Carrie Arnold. (2017). The trouble with genetic testing. July 19. CAMcheck
  31. Carrie Arnold. (2017). We are all mutants now: The trouble with genetic testing. July 18. Health & Wellness, SlackUp, The Guardian
  32. Steve Paikin. (2017). The Agenda: Issues with genetic testing. TV Ontario. Air date February 8. More Information.
  33. Expert testimony to Senate of Canada Standing Committee on Justice and Human Rights (2016). Bill S201, an Act to prohibit and prevent genetic discrimination. Meeting No. 35 JUST. ParlVu. More Information.
  34. InfoBioQuimica.ca (2016). Study looks at how parents use newborn screening results. November 1. InfoBioQuimica.ca.
  35. Yvonne Bombard et al. (2016). Universal tumour screening for Lynch syndrome: health-care providers’ perspectives: Genetics in Medicine: Springer Nature. October 7. Ovarian cancer and us. More Information.
  36. St. Michael’s Hospital (2016). Should patients be allowed to opt out of routine testing for colorectal tumours for genetic linkage? October 7. Health Canal. More Information.
  37. Shirley Johanna (2016). Genetic testing for Lynch Syndrome helps identify colorectal cancer risk. October 6. Medindia.
  38. Paul Taylor (2016). Will Bill S-201 protect the privacy of my personal genetic tests? September 15. The Globe and Mail, MyInforms.com 
  39. Kathryn Doyle (2016). Parents may misuse results of infant genetic testing. September 14. Fox News Health, Compuserve: Odd News, WHTC Holland’s News Leader, NewsHour, SRNNews, Successful Farming at agriculture.com, WSCI: News Talk 10/10, WTVB: The Voice of Branch County, WHBL: Sheboygan’s News Radio, Lifescript, The Jamestown Sun, Channel News Asia, WIFC, Yahoo! News, WLMI, WNMTAM 650: Northern Minnesota Talk, Reuters
  40. Paul Taylor (2016). Parliament considers privacy rules for genetic tests. September 14. Your Health Matters
  41. Diana Zlomislic (2016). Toronto study questions ‘reproductive benefits’ of newborn genetic testing. September 8. The Toronto Star, Waterloo Chronicle, Brampton Guardian, Bioethics
  42. Marcia Kaye. (2016). The ethics of gene editing. Summer 2016. University of Toronto’s Magazine. More Information.
  43. Strauss Stephen (2016). CRISPR from a model T to a lamborghini.  It’s like a microwave  instead  of  a campfire. May 6. University of Toronto’s Magazine
  44. Senator Jim Munson, Chair (2016). Expert testimony for bill S-201 An act to prohibit and prevent genetic discrimination. Standing senate committee on human rights. Ottawa, Ontario. February 16.
  45. Bombard Y. (2016). CRISPR from a model T to a lamborghini. It’s like a microwave  instead  of  a campfire.  May 6. University of Toronto’s Magazine. More Information.
  46. How genetic testing can be used against you – and how Bill S-201 could change that (2016). The Globe and Mail, Kerry Gold, April 3. More Information.
  47. Genetic test results should be kept confidential, people avoid testing because of Fears over who can access the information. (2016) Gerald Herbert, CBC News, February 4.
  48. Genetic Non-Discrimination Bill – Bill S-201, An Act to prohibit and prevent genetic discrimination. (2016) The Honourable James S. Cowan, Leader of the Senate Liberals, 1st Session, 42nd Parliament Second Reading of the Genetic Non-Discrimination Bill; moved second reading of Bill S-201, An Act to prohibit and prevent genetic discrimination, Jan 27. More Information.
  49. Kylie Taggart (2015). How physicians should respond to patients who seek direct-to-consumer genetic testing. Medical Post. January 12.
  50. Canadian Cancer Society Research Institute Impact Report (2015). Oncologists’ perspectives on gene profiling tests in breast cancer.
  51. Fraser F (2015). The science of genetic testing has outpaced the laws that protect our privacy. May 16. The Chronicle Herald. More Information.
  52. Gillis C (2015). D.I.Y. DNA: Genetic testing at home is risky business. March 23. Maclean’s Magazine.
  53. Shepherd Leslie (2015). Oncologists see gene expression profiling tests as helpful but have concerns. March 6. Eurekalert. More Information.
  54. Shepherd Leslie (2015). Oncologists praise gene expression profiling tests as a decision-making tool for women with early-stage breast cancer but also have significant reservations. March 6. Health Canal. More Information.
  55. New-medical.ca (2015). Oncologists welcome gene expression profiling tests for women with early-stage breast cancer but have concerns, March 9. More Information.
  56. Turna Ray (2015). Ontario Study Indicates Variation in Oncotype DX Use; US Study Shows Use According to Guidelines. GenomeWeb. March 10. More Information.
  57. Shepherd Leslie (2015). Research on gene expression profiling tests. March 9. Longwoods.com. More Information.
  58. Medicalxpress.com (2015). Oncologists welcome gene expression profiling tests for women with early-stage breast cancer but have concerns. March 9. More Information.
  59. Alice Musabende (2015). Canada’s legal gap undermining promise of genetic testing. iPolitics. Jan 7, 2015. More Information.
  60. Rowse Helen (2014). Barriers to obtaining gene expression profiling tests increase their perceived value among patients. Oncology Nurse Advisor, July 10. More Information.
  61. Kelly Grant (2014). Gene expression profiling test expands to assess colon and prostate cancers. The Globe and Mail. June 22. More Information.
  62. Shepherd Leslie. (2014) Barriers to obtaining gene expression profiling tests heightened their perceived value among patients, new study says. Health Canal, June 18. More Information.
  63. Bright Surf.com(2014) Barriers to obtaining gene expression profiling tests heightened their perceived value among patients, new study says. June 18. More Information.
  64. Medicalxpress.com (2014). Barriers to obtaining gene expression profiling test heightened perceived value. June 17. More Information.
  65. Shepherd Leslie (2014). Barriers to obtaining gene expression profiling test heightened perceived value. Science Daily, Press-News.org. June 17.
  66. Sidenei José de Melo (2014). Barriers to obtaining gene expression profiling test heightened perceived value. sid_melo-science and technology. June 17. More Information.
  67. Science Codex.com (2014). Barriers to obtaining gene expression profiling test heightened perceived value. June 17. More Information.
  68. Shepherd Leslie (2014). Research on gene expression profiling tests for breast cancer patients. Longwoods.com. June 17. More Information.
  69. Kathy Boltz (2014). Gene expression profiling weighs heavily in decisions for breast cancer patients yet poorly understood. Chemotherapy Advisor. May 16. More Information.
  70. Shore Randy (2014). Refusal to test: Many people fear problems if disease risk found. Vancouver Sun. May 6. More Information.
  71. Carinchan Kaneda (2014) Read this before opting for chemotherapy. May 3. More Information.
  72. Linton Marilyn (2014). Read This Before You Opt For Chemotherapy. May 1. – Huffington Post. More Information.
  73. MediLexicon Intl. (2014). Gene expression profiling test important for breast cancer patients. Apr 30 Medical News Today. More Information.
  74. Benz Maria (2014). Many Breast Cancer Patients Do Not Understand Gene Expression Profiling. Medical Research.com. Apr 29. More Information.
  75. Genoweb, Groudin (2014). Breast cancer patients place huge emphasis on gene expression profiling test. Apr 29. More Information.
  76. Third Age.com (2014). Study: Chemotherapy Not Always Best for Breast Cancer. Apr 29. Third Age.com. More Information.
  77. Shepherd Leslie (2014). Breast cancer patients place huge emphasis on gene expression profiling test when making chemotherapy decisions, but many do not fully understand test. Apr 28. Longwoods.com. More Information.
  78. Shepherd Leslie (2014). Breast cancer patients place huge emphasis on gene expression profiling test. Apr 28. GenomeWeb, American Medical Network
  79. Shepherd Leslie (2014). Breast cancer patients place huge emphasis on gene expression profiling test when making chemotherapy decisions, but many do not fully understand test. Apr 28. Health Canal. More Information.
  80. Shepherd Leslie (2014). Breast cancer patients place huge emphasis on gene expression profiling test. Apr 28. freenewspos.com. More Information.
  81. Shepherd Leslie (2014). Newborn Screening: Public Views on Participation – Apr 23. Orphan Druganaut Blog. More Information.
  82. Researcher explores public perceptions related to newborn screening programs- NewsMedical.net: More Information.
  83. Shepherd Leslie (2014) Researcher looks at public perceptions around newborn testing. Apr 20. Web Newswire, PressNews.org 
  84. Kathy Jones (2014). Public Perceptions Around Newborn Testing Examined by Researcher. Apr 20. medindia.net. More Information.
  85. Shepherd Leslie (2014). Canadians support screening newborns for specific genetic conditions, but less enthusiastic about sequencing newborns’ genomes. Apr 18. Healthcanal.com. More Information.
  86. St. Michael’s Hospital (2014). Public perceptions around newborn testing. Apr 17. Science Daily. More Information.
  87. Shepherd Leslie (2014). Canadians support screening newborns for specific genetic conditions, but less enthusiastic about sequencing newborns’ genomes. Apr 17. Longwoods.com. More Information.
  88. Shepherd Leslie (2014). Most Canadians support screening newborns for specific genetic conditions, sequencing genomes. Apr 17. U of T News. More Information.
  89. pressreleasepoint.com (2014). Most Canadians support screening newborns for specific genetic conditions, sequencing genomes. Apr 17. University of Toronto. – More Information.
  90. Shepherd Leslie (2014). Researcher looks at public perceptions around newborn testing. Apr 17. eurelalert.org, Medical Express, ScienceNewsline, PressNews
  91. Ashford Molika (2014). Survey Says Parents Less Keen to Participate in Genome Sequencing-based Newborn Screening. Genomeweb.com, Clinical Sequencing News. Mar 5. More Information.
  92. van Rhijn Judy (2014). Debate rages in insurance industry over genetic testing. Jan 6. Law Time News.com. More Information.
  93. Leo Petaccia. (2014). Say hello to your DNA, Toronto Post Magazine. Jan 2. More Information.
  94. Leslie Keith (2013). Bill would prevent genetic discrimination in Ontario. Nov 5. The Canadian Press, Globe and Mail. More Information.
  95. Leslie Keith (2013). Bill would change Ontario Human Rights Code to prevent genetic discrimination. Nov 4. The Canadian Press. CTV London News. More Information.
  96. Leslie Keith (2013). Advocates back Ontario bill aiming to safeguard genetic data from insurance firms. Nov 4. The Globe and Mail. More Information.
  97. Curtin Ciara (2013). Whole genome sequencing in newborn screening. Oct 28. Genome Web. More Information.
  98. Cohen Tobi (2013). Conservative throne speech takes up opposition proposals to bar ‘genetic’ discrimination. Oct 13. Postmedia News, Vancouver Sun. More Information.
  99. Bresnick Jennifer (2013). Genetic research, data analytics face privacy, ethics concerns. Sept 9. Health IT Analytics. More Information.
  100. Kelly Janis C. (2013) Cancer Gene Sequencing Raises New Medical Ethics Issues. Sept 6. Medscape Medical News. More Information.
  101. Abrahams Carolyn (2011). The DNA dilemma. Nov 2. Globe and Mail. More Information.
  102. Tremonte Anne Marie (2010). The DNA Dozen. Oct 15. The Current. More Information.
  103. Kusch Larry (2010). Private member’s bill would outlaw genetic discrimination. Feb 26. Winnipeg Free Press. More Information.
  104. Turenne Paul (2010). MP fights ‘genetic discrimination’. Feb 25 Winnipeg Sun. More Information.
  105. Genewatch (2009). Genetics and Popular Culture. Dec 15. More Information.
  106. Gene pool no place for insurers to jump in (2009). Globe and Mail, Forbes, ABC, MSN, CBC, Toronto Star, CTV, Calgary Harold
  107. Hall Joseph (2009). Study finds genetic discrimination by insurance firms. Sept 9. Toronto Star. More Information.
  108. UPI.com (2009). Study focuses on genetic discrimination. June 16. Science News. More Information.
  109. Jennifer Thomas (2009). People With Huntington’s Report Discrimination. June 13. ABC News. More Information.
  110. Jennifer Thomas (2009). People With Huntington’s Report Discrimination. June 13. US News.
  111. Brunner Stephanie (2009). Risk Of Discrimination For Individuals With Family History Of Genetic Disease. June 12. Medical News Today.
  112. Colvin J. (2009). Huntington’s history an insurance hurdle. June 12. The Globe and Mail. More Information.
  113. ScoutNews, LLC. (2009). Discrimination Perceived in Huntington’s Disease. June 10. Modern Medicine. More Information.
  114. OnMedica Staff. (2009). Patients with genetic disease history face discrimination. June 10. OnMedica News.
  115. ANI. (2009) People with family history of genetic disease at discrimination risk. June 10. Thaindian.com. More Information.
  116. thespec.com (2009). Study finds genetic discrimination by insurance firms. More Information.
  117. Joseph Hall. (2009). com. Study finds genetic discrimination by insurance firms. June 9 More Information.
  118. CTV.ca News Staff. (2009) Some Canadians suffering ‘genetic discrimination’. CTV News. June 9. More Information.
  119. Individuals with family history of genetic disease at risk of discrimination – (2009) Genetic Engineering & Biotechnology News June 9. More Information.

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